Ody Sibon received a check of € 115.954,00 from the Stichting Zeldzame Ziekten Fonds

Ody Sibon received a check of € 115.954,00  from the Stichting Zeldzame Ziekten Fonds for her project: development of a treatment for PKAN. October 7^th, the Jan Lammers Rally was organized and all donations were directed to this PKAN project.

See also www.zzf.nl.