NWO grant for research consortium (ao Kampinga/Hipp group UMCG)

There are more than ten hereditary brain diseases that are all caused by the same type of DNA error, including Huntington’s disease. The first promising trials have recently started, but there are still many open and urgent questions. When is the best time to start therapy? Can the onset of the disease be predicted, and do gene carriers want to know? Is an alternative treatment also possible without an epidural or brain surgery? And what does this mean for very young patients? Researchers, physicians, ethicists, biotech companies and patient associations will jointly answer these questions, with the aim of enabling a person-centred approach and treatment.

Secretariat on behalf of the consortium: prof. dr. E.A.J. (Eric) Reits – Amsterdam UMC Location AMC

Consortium: Amsterdam UMC – AMC location, Radboud university medical center, Erasmus MC, Hanze University Groningen, Leiden University Medical Center, VU University Amsterdam, Princess Máxima Center for Pediatric Oncology, University Medical Center Groningen, Amsterdam University of Applied Sciences, Maastricht UMC+, Animal Free, Huntington Campaign Team , Vico Therapeutics, ADCA/Ataxia Association, VectorY, Huntington Association.

Amount allocated: 4.7 million euros